Providing support and information to families of children with disabilities, chronic illness and other special health care needs
| Texas Parent to Parent | |
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| Photos by Innovative Photography | ||
Providing support and information to families of children with disabilities, chronic illness and other special health care needs |
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Resource Directory - Information on Financial Resources |
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| If you find mistakes or would like to recommend a resource to be added to these lists, please email Laura@txp2p.org with the correct information or resources. |
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Services for Parent Site Map |
SSI (Supplemental Security Income) |
Children with disabilities qualify but there are strict financial guidelines - almost always turns you down the 1st time but you should appeal. |
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Children’s Health Insurance
Program (CHIP) |
For families that are not eligible for Medicaid but do not have access to insurance for their children; income requirements. |
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Children with Special Health
Care |
Medicaid Waiver Program based on child’s income. Provides case management and financial help for medical care, services and equipment. Waiting list. |
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Medically Dependent Children
Waiver |
Medicaid Waiver Program based on child’s income. Provides a variety of services to support families caring for children who are medically dependent and to encourage deinstitutionalization of children in nursing homes. Waiting list. |
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National PASS Network |
The National PASS Network (NPN) is a national educational and consumer advocacy organization on Social Security and Veterans Administration disability compensation benefits. Since 1983, NPN's primary mission has been to advocate for improved public access, work to increase consumer awareness and promote informed participation in the federal Social Security disability benefit, aging support and work incentive programs. |
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Toll free: 866-896-6001 512- 458-8600 Fax: 512-451-3110 |
Community Living Assistance
and Support Services (CLASS) www.dads.state.tx.us/services/dads_help/ children.html; 512-438-3011 |
Medicaid Waiver Program based on child’s income. Provides services necessary to keep person with disability living in the community. Waiting list. |
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MLRA (Mental Retardation
Local Authority)
or
HCS
(Home and Community Supports) |
Supports” on the right side of page; click on “Types of Services”; go to the bottom of the page and click on “Waiver”) Program based on child’s income. Provides services necessary to keep person with mental retardation living in the community. Waiting list. |
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Medical Transportation
Program |
If you are currently eligible for regular Medicaid or Children with Special Health Care Needs, you may qualify for this program, which pays for transportation costs. Must call two days in advance to appointment |
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| UnitedHealthCare Children's Foundation - Family Grants Online application at the foundation's Web site at http://uhccf.org. To be eligible for a grant, children must be 16 years of age or younger. Families must meet economic guidelines, reside in the United States, and be covered by a commercial health benefit plan. Individuals who receive care via Medicaid, Medicare or other state or federally subsidized health insurance programs are not eligible. |
Offering grants (up to $5,000) to help children who need critical health care treatment, services or equipment which is not covered -- or not fully covered -- by their parents' health benefit plans. The grants can help families pay for child health care services such as speech therapy, physical therapy, occupational therapy sessions, prescriptions and medical equipment such as wheelchairs, orthotics and eyeglasses. |
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Texas Elks Children’s
Services Inc. |
Provides medical equipment to eligible children who have no other funding source to pay for items needed. Must start at a local Elks Lodge – call for location nearest to you. Also has a camp for children with special needs. |
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| Make-A-Wish Foundation www.wish.org 800-722-WISH (9474) |
Volunteer organization dedicated to fulfilling the wishes of children between the ages of 2½ - 18 who have been diagnosed with a life-threatening illness or disability. | |||
The Sunshine Foundation |
Grants special dreams to children, ages 3-21, who are seriously ill, physically challenged or abused. |
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Speak Up Texas |
Free service dedicated to helping Texans with speech-related disabilities communicate more effectively using the telephone; includes equipment consultation, at-home trainings, operator assistance, and professional support. |
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National Patient Travel
HELPLINE |
Provides assistance and referral to the best source of charitable medical air transportation help. |
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RxAssist |
Provides information on public, private, and governmental resources available to help with the cost of prescriptions. May have to have physician or other health care providers help to assess the assistance programs. |
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CF Pharmacy Services
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An independent pharmacy for patients and families across the U.S. formed specifically to meet the needs of CF patients. In addition to medications, they carry a full-line of respiratory equipment and supplies as well as nutritional supplements. | |||
| If you find mistakes or would like to recommend a resource to be added to these lists, please email Debbie@txp2p.org with the correct information or resources. | ||||
Last Updated: December 1, 2008 |
Find out about parent to parent programs in other states or to find out how to start a parent to parent program in your state, go to Parent to Parent USA! www.p2pusa.org |  |
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