Texas Parent to Parent

Resources

Resource Directory - Information on State Support Organizations
If you find mistakes or would like to recommend a resource to be added to this list,
please email Debbie@txp2p.org with the correct information or resources.
DBMAT-DeafBlind Multihandicapped Association of Texas
www.dbmat.org
pwelch@usaonline.net
432-263-1658
Provides information and support
Texas DeafBlind Outreach www.tsbvi.edu/Outreach/
deafblind/family.htm
 
Home Onsite Consultation, Topical Workshops for Families, Project Sparkle, Family Leadership Training, Collaboration with DBMAT
Family Training & Support:
Edgenie Bellah: 512-206-9423 or edgeniebellah@tsbvi.edu
Jean Robinson: 817-847-7999 or jeanrobinson@tsbvi.edu
Hear Me Foundation
www.hearmefoundation.org
281-359-6725
Provides Education, Public Awareness, Mentoring, Medical & Educational Outreach, Camp and year round events.
Children’s Hemiplegia & Stroke Association, Arlington, TX
http://www.chasa.org; info5@chasa.org
817-492-4325

Provides online support, annual retreat, and newsletters

The Chromosome 18 Registry & Research Society
www.chromosome18.org
210-657-4968
Provides individuals with chromosome 18 abnormalities overcome the obstacles they face by providing newsletters, an annual conference, a parent network, syndrome groups, regional groups, information and public advocacy, and funding clinical research.
Texas Autism Advocacy
www.TexasAutismAdvocacy.org
Provides individuals with chromosome 18 abnormalities overcome the obstacles they face by providing newsletters, an annual conference, a parent network, syndrome groups, regional groups, information and public advocacy, and funding clinical research.
TX Region Rett Syndrome, Childress, TX llcoats@sbcglobal.net
940-937-6584
An Internet list designed to enhance the work of other autism related groups and organizations, parents and professionals - to better connect everyone across Texas. A comprehensive all inclusiver internet list for exchanging and learning about all areas of autism - diet, supplements, treatments, educational strategies, legislation, etc.
Texas Assc. for Parents of Children with Visual Impairments (TAPVI), Dallas, TX
www.TAPVI.org; info@TAPVI.org
281-842-7030

Provides information and support

Coalition of Texans with Disabilities
Austin, TX
www.cotwd.org; cotwd@cotwd.org
512-478-3366

Works on cross-disability issues to impact policy, disability rights issues, and practice in our state; provides newsletter and conference

Texas Disability Network Calendar of Events
Go to www.TexasAutismAdvocacy.org and click on "Calendar of Events"
Includes events, seminars, and conferences in Texas and are general t o any disability; updated weekly. Contact MichelleMGuppy@yahoo.com if you want to submit an event.
VCFS Texas, Inc. 
www.vcfstexas.com or info@vcfstexas.com
512-909-8359 (Deborah Trejo);
214.731.9393 (Ashli Cheung);
832-630-9915 (Megan Wawarofsky)
Provides support and resources to individuals with Velo-Cardio-Facial Syndrome (a.k.a. DiGeorge syndrome) (VCFS), their families, professionals, and the community in Texas
If you find mistakes or would like to recommend a resource to be added to this list,
please email Debbie@txp2p.org with the correct information or resources.