Resources: Recent Articles

The following are articles and handbooks for parents whose child has a chronic illness, disability, or other special health care need. If you’d like to contribute an article, please contact Laura Warren at Laura@TxP2P.org. If you are looking for additional content, try our newsletter archive. We encourage you to share these with other parents who may find them helpful. If you choose to reprint them, we ask that you attribute Texas Parent to Parent as the source.

Becoming an Advocate for Your Child

• How to advocate for more resources for your child (PDF)

Care for the Caregiver

• Give yourself a break for just five minutes
• Taking care of yourself
• Bill of rights of parents of children with disabilities
• 25 thoughts to get you through almost any crisis (just for fun)

Deaf/Hard of Hearing

• Parent manual for those with children who are deaf or hard of hearing (PDF)

Grief and Stages Parents Experience

• The impact of childhood disability: the parent’s struggle
• Four stages of adaptations
• You are not alone

Inspirational Stories

• Where are the parents?
• Welcome to Holland
• Welcome to Beirut
• Celebrating Holland
• Holland Scholland

Medical Home

• What’s all the fuss about medical home (PDF)
• Health care visit check list for all children (PDF)
• Physician-parent email improves communication and patient care (PDF)

People First Language

• Describing people with disabilities
• KASA respectful disability language
• KASA youth-friendly accessible language

Transition/Self Determination

• Getting ready for the future
• Seven steps to transition
• The tools of self determination