Support Organizations
| If you find mistakes or would like to recommend a resource to be added to this list, please email resources@txp2p.org with the correct information or resources. | |
DBMAT-DeafBlind Multihandicapped Association of Texas http://www.dbmat-tx.org/ (281) 302-5454 Rmknapp14@gmail.com | Provides information and support |
| Texas DeafBlind Outreach | Home Onsite Consultation, Topical Workshops for Families, Project Sparkle, Family Leadership Training, Collaboration with DBMAT Family Training & Support: Edgenie Bellah: 512-206-9423 or bellahe@tsbvi.edu Rachel Simpson: 512-206-9305 or simpsonr@txbvi.edu |
| Educational Resource Center on Deafness (ERCOD) www.texasdhhresources.org1(512)-982-1646 1(512)-462-5329 (Video phone)
| The Educational Resource Center on Deafness brings the resources of the Texas School for the Deaf to the state, as well as, works collaboratively with a variety of agencies, programs, and schools across Texas to create a network of information, services, and support designed to meet the needs of deaf and hard of hearing students, their families, and the professionals who serve them. |
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| Children’s Hemiplegia & Stroke Association, Arlington, TX http://www.chasa.org;info5@chasa.org 817-492-4325 | Provides online support, annual retreat, and newsletters |
| The Chromosome 18 Registry & Research Society www.chromosome18.org 210-657-4968 | Provides individuals with chromosome 18 abnormalities overcome the obstacles they face by providing newsletters, an annual conference, a parent network, syndrome groups, regional groups, information and public advocacy, and funding clinical research. |
| Rett Syndrome.org | Family Empowerment Representatives are volunteers who provide emotional support, information and resources to families affected by Rett syndrome. |
| Texas Assc. for Parents of Children with Visual Impairments (TAPVI) http://www.tapvi.com/ | Provides information and support |
| Coalition of Texans with Disabilities
Austin, TX
http://www.txdisabilities.org/ 512-478-3366 | Works on cross-disability issues to impact policy, disability rights issues, and practice in our state; provides newsletter and conference |
| VCFS Texas, Inc. www.vcfstexas.com 22qtexas@gmail.com
| Provides support and resources to individuals with Velo-Cardio-Facial Syndrome (a.k.a. DiGeorge syndrome) (VCFS), their families, professionals, and the community in Texas |
| If you find mistakes or would like to recommend a resource to be added to this list, please email resources@txp2p.org with the correct information or resources. | |