Health care transition refers to your child's move from pediatric medical services and insurance to adult medical services and insurance. Three issues may come up during this transition:
- Age 18 is the age of majority in Texas! This is when a person assumes the rights and privileges of adulthood. Starting at age 18, a health care professional may not share information with parents unless you make provisions to do so. Parents will still have the right to information for a youth over 18:
- If the parent has become the child's guardian,
- if the youth has given the parent medical power of attorney,
- if the youth has signed a form for a specific medical provider giving the parent this right. Also in many situations the youth can invite his or her parent to participate at appointments, etc.
- Finding adult medical services to replace pediatric. Often families have a close relationship with pediatric providers and find it hard to move on; also it can be difficult to find adult providers who will take on adults with disabilities and complex issues. Suggestions to cope with this transition are:
- ask for recommendations from current pediatric providers
- get recommendations about adult providers from other parents and the TXP2P listservs
- start a care notebook to record your child's pediatric history and prepare to pass on records and information to new adult providers. Click here for the TxP2P Care Notebook.
- Families must also plan for how to pay for adult medical services. Sources of medical insurance for adults with disabilities are:
- work-place medical insurance. Children can stay on a parent's plan through age 26; after that, a working parent can petition with their workplace Human Resources Department to keep the child on the parent's plan based on the child's disability.
- HIPP (Health Insurance Premium Payment) might pay your private medical premium for your family if your child is on your plan and also has Medicaid. See http://www.gethipptexas.org/
- Medicaid, see http://www.hhsc.state.tx.us and http://www.medicaid.gov/Medicaid-CHIP-Program-Information/By-State/texas.html
- Medicaid Buy-In, see http://www.hhsc.state.tx.us/
- Your child may also end up with Medicare 24 months after going on SSDI. Medicare has an excellent website--http://www.medicare.gov/
- Other services are available at http://www.dads.state.tx.us/
For an article on the issue of healthcare transition, see:
- Medical Transition - Getting Your Child Ready to Move from Pediatric to Adult Medical Services
Here is a great website on all phases of healthcare transition:
There is an annual conference at the Baylor College of Medicine on medical transition, the Chronic Illness and Disability Conference: Transition from Pediatric to Adult-based Care. Please call the TXP2P office for up-to-date information on this conference, which is in Houston in early October each year.